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Offline granma3xnow.westnilevirussurvivorsfoundation

Total Posts Last Post Last Seen Joined
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12/09/08
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West Nile Survivor, August 2007 Was sick in September 2003 and told WNV. Found out in 2008 that I test postive for LaCrosse and WNV. Whew. Am going on going on nine months now and am still not up to speed. Had to relearn walking, talking and thinking. Social Security has deemed me disabled, but I hope not to be down and out until retirment age. Has any survivor gone through this much trouble? It is not like a cold or the flu, sick for a few days or weeks......it has been months!!!!!

Has anybody ever fully recovered?

Title Type Date
Re: Longest since WNV and still having symptoms Reply 06/29/09

Comments about me

looking for survivors of west nile virus

  1. avatar

    jack raney

    User Infostatus offline184 Kudos

    12/06/08

    Some people get over it like nothing happened to them, some struggle to live the simplest of life, some fight and find away out and never turn around to see where they came from. I'm a different breed, I fought to be better, fell many times, skinned my knees, blacked both my eyes. I might not be who I was or who I thought I should be,,,,,,, I'm more. It takes time to recover.

    12/07/08

    Reply from granma3xnow:

    Yes, there were so many bruises on me, my own mother did not want to look at me. I spent several days in a coma, and don't remember much of my hospital stay. When I woke up, just befor transfer to a nursing home, I couldn't even sit up. My brain was working, not well, and I have been very frustrated ever since. I couldn't walk right because my left side was affected. My brain "said" this is nuts!!! You were just on your feet in August 2007. I couldn't verbalize, because it caused great pain, just to think.
    But, I was fighting for my freedom!!!!
    I most likely started walking at age 1, I wanted some of that back. So I kept wiggling everything I could. And practicing talking!! (mostly cursing) ha-ha. I told the nursing home folks to let me out, they said "how are you going to leave" and I said "through the front door, same way I came in".
    The walker, the cane, and then free standing. Several months of physical therapy and I had gone as far as I could. Every day I am still surprised by some form of vertigo. My walk is just a shuffle, as I cannot "speed" up. But I am still on my feet!!!! (only one who has "kissed the floor" can know what it is like)
    Many months later, my first time behind the wheel of my car.....whew!! I can only drive about slow and I feel nauseous doing that. But this is a small town, so I don't have to go fast. A couple of chores a day is all I'm good for. Then it takes several days to recover.
    While I wake up some mornings with a feeling of OH WOW YOU MADE IT THROUGH THE NIGHT!! I'm glad I made it. However I do still wonder where the "rest" of me is. She is in my head, she just hasn't found her way out yet.